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4th Jan

2018

New website launched to support kids with juvenile arthritis

A new website has been launched to support the more than 6000 children across NSW affected by juvenile arthritis and other rheumatic diseases.

The Paediatric Rheumatology Network (PRN) website is an initiative of Arthritis NSW in conjunction with the Sydney Children’s Hospitals Network, John Hunter Children’s Hospital and the Agency for Clinical Innovation and was made possible by a $35,000 grant from Newcastle Permanent Charitable Foundation.

The PRN website was developed to deliver important resources to further support young patients and their families in regional and rural NSW and is designed to provide patients and families accurate up to date information about their child’s illness, as well as a place for them to hear other families’ stories.

Dr Jeffrey Chaitow, Department Head of Rheumatology at the Sydney Children’s Hospitals Network said that the Paediatric Rheumatology Network website aims to create an online network of support for patients and families, as well as the medical teams that care for them, regardless of where they live and practice in NSW.

“Juvenile arthritis may have a debilitating effect on the young person diagnosed and as a result, this chronic illness also commonly affects the lives of carers and family responsible for looking after children with this condition. Fortunately though, with modern day multidisciplinary therapy, we aim to keep these patients functioning as normal children and adolescents.”

“This website will complement that, enabling access to information and resources regardless of a family’s geographic location,” Dr Chaitow said.

The website can be viewed at http://www.prn.org.au/

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